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Stories from Caregivers

The starting point for change is listening to and valuing the stories of caregivers about their experiences - their struggles and their joys, the supports they found and the barriers they experienced, their insights into the system of today and their vision for a better world tomorrow. We thank our caregiver members for sharing their stories, in the hope that their words can make change and help other caregivers.  

Lack of Respite

System Navigation and Advocacy

Financial Distress and Employment Pt 1

Financial Distress: Limited Public Supports

Life is in Limbo

Financial Distress and Employment Pt 2

A Balancing Act

Care Coordination

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